Monday, June 27, 2011

Learn Carter's past, Improve his future!

This video is a little long, but I think it's the best way to show what Carter has been through so far and what our future holds. Carter has been fighting since he was born. It's so much easier to talk about what he's been though, what is behind us, because I know how that turned out. His time in the NICU was incredibly trying. It seems like so long ago, but then again I remember it all so well. That fear never really leaves you. We thought that Carter's fight was over, that he'd grow up to be a healthy little boy. Then came Duchenne. It is 100% fatal, with no cure. There are many promising treatments within reach for Carter and thousands of others in this generation of boys. But, we need funding to keep things going and speed research up. With a progressive disease like Duchenne, we are always fighting the clock.

Please make a donation today if you can. ANY amount helps. http://www.cureduchenne.org/site/TR/Events/General?px=1013680&pg=personal&fr_id=1050


Thank you so much!! :)

Monday, June 20, 2011

Please join us!!

We are so excited to see our first fundraiser coming together. In less than 2 weeks we will be hosting our climb to Mt. Rubidoux!! Please see our team page to make a donation. www.tinyurl.com/teamaltura. You can make a general team donation or click on one of our names to sponsor directly (all funds will go towards team goal). Carter would love to have some donations made in his name.. He raised over $150 for Jump Rope for Heart and he's determined to do better than that for Duchenne!! Please help him. :)

Please email me to RSVP if you plan on attending the climb (cure4carterblaze@gmail.com), we will be BBQing and holding a bake sale and raffle and want to make sure we have enough of everything. It's going to be a great day of fun for the whole family!! The trail is wheelchair/stroller accessible and we will be walking at at gentle speed. We hope you will join us! :)

I am taking orders for our Team tshirts. They are $8 each and come in every size from YXS-2XL. Email me: cure4carterblaze@gmail.com to place your order.

 

Wednesday, June 1, 2011

Team Altura: Carter's Climbers


Most Duchenne boys will not survive their teenage years. Those that do are faced with muscle fatigue and pain and will likely need a wheelchair by age 12. The simplest tasks become difficult, and in their later stages, heart and breathing muscles begin to fail. Over 24,000 boys are living with the disease in the United States alone. The disorder knows no ethnic or social boundaries and effects 1 in 3500 boys born worldwide.




As many of you know, my 7 year old son Carter has Duchenne muscular dystrophy. It is devastating and 100% fatal. We were shocked to learn the diagnosis, less a month after I started at Altura in July 2007. I’ve been incredibly blessed by the support of my Altura Credit Union family throughout our journey (which is only just beginning) and I am thrilled to announce our next step!



Two years ago, CureDuchenne launched “CureDuchenne Adventure – Climb to CureDuchenne: Pick Your Peak.” Last year, over 200 people throughout the country chose a mountain, hill or tall building to climb, raise funds and increase awareness for the organization. Together they raised $250,000 – an incredible feat for a second-year event! This year, Climb to CureDuchenne: Pick Your Peak is scheduled for June 18 - July 17. The last two years, teams of adventures previously climbed tall buildings, big hills and even Mt. Shasta. It may seem ironic to use athletic events to raise funds for boys who are limited in their physical activity and no longer able to walk on their own by age 12. But our boys are no different than every child who has dreams of participating in sports, of being a baseball player, a football player and even a cowboy! With enough support and awareness, we can make those dreams a reality for Duchenne boys.


Team Altura: Carter’s Climbers will be hosting our first annual family-friendly 5 mile hike to beautiful Mt. Rubidoux in Riverside on Sunday July 3rd @ 2:00pm, from our 14th Street branch. The walk will be a 5 mile loop and is stroller/wheelchair accessible. It will be a day of fun for the whole family and we hope to see many of you there!!

You can make donations and register as a team member here. http://tinyurl.com/teamaltura Registration includes a CureDuchenne tshirt and the ability to create an individual fundraising webpage, if you make at least a $25 donation. You don't need to register to join us, but we hope you will.
Please contact me to get involved!! cure4carterblaze@gmail.com =) Stay tuned for more details!