I recieved my first copies of SAVING OUR SONS ONE STORY AT A TIME this weekend. Thank you so much to Misty Vanderweele for putting this book together!! It's surreal to see my story, Carter's Story, in print and I'm truly honored to be involved. Each personal story in the book brought me to tears. It's amazing how similar the heart of our stories are. All of our lives have been turned upside down by Duchenne. A disease that most of us had never heard of prior to our son's heartbreaking diagnosis. None of us planned on this life, but we are all striving to make the best of it. We are determined to give our sons a future.
Please, if you haven't already, order the book!! (http://www.savingoursonsonestoryatatime.com/?ap_id=cure4carterblaze or email me) It's inspiring and a real eye opener into what day to day life is like for our families affected by Duchenne. Proceeds from books I sell will go towards Carter's expenses not covered by insurance. Please email me at: cure4carterblaze@gmail.com with any questions.