Tuesday, July 26, 2011

SAVING OUR SONS One Story at a Time





I recieved my first copies of SAVING OUR SONS ONE STORY AT A TIME this weekend. Thank you so much to Misty Vanderweele for putting this book together!! It's surreal to see my story, Carter's Story, in print and I'm truly honored to be involved. Each personal story in the book brought me to tears. It's amazing how similar the heart of our stories are. All of our lives have been turned upside down by Duchenne. A disease that most of us had never heard of prior to our son's heartbreaking diagnosis. None of us planned on this life, but we are all striving to make the best of it. We are determined to give our sons a future.

Please, if you haven't already, order the book!! (http://www.savingoursonsonestoryatatime.com/?ap_id=cure4carterblaze or email me) It's inspiring and a real eye opener into what day to day life is like for our families affected by Duchenne. Proceeds from books I sell will go towards Carter's expenses not covered by insurance. Please email me at: cure4carterblaze@gmail.com with any questions.

Monday, July 18, 2011

Thank You (from Carter)

Please see Carter's post below for pictures and information on our fundraiser we held in July. He wrote this all on his own, so proud of him. He continues to ask me how we can raise more money to CURE Duchenne and has a lot of ideas. Carter is amazingly strong and I know he will do big things to make a difference for himself and others with Duchenne.

http://carter1b.blogspot.com/2011/07/thank-you.html

Monday, June 27, 2011

Learn Carter's past, Improve his future!

This video is a little long, but I think it's the best way to show what Carter has been through so far and what our future holds. Carter has been fighting since he was born. It's so much easier to talk about what he's been though, what is behind us, because I know how that turned out. His time in the NICU was incredibly trying. It seems like so long ago, but then again I remember it all so well. That fear never really leaves you. We thought that Carter's fight was over, that he'd grow up to be a healthy little boy. Then came Duchenne. It is 100% fatal, with no cure. There are many promising treatments within reach for Carter and thousands of others in this generation of boys. But, we need funding to keep things going and speed research up. With a progressive disease like Duchenne, we are always fighting the clock.

Please make a donation today if you can. ANY amount helps. http://www.cureduchenne.org/site/TR/Events/General?px=1013680&pg=personal&fr_id=1050


Thank you so much!! :)