Thursday, July 22, 2010

DMD Gait Analysis study at UCLA

Carter had his first appointment for the DMD gait study at UCLA on Wednesday the 21st. It went well and it was very interesting to see all the high tech stuff that they used for the different assessments. They also think he's probably going to be on the milder end progression-wise. He does have tightness in his legs and fatigues easily, but was able to do all the gross motor tests they had him try (except hop on his left foot 10 times). We were happy to hear that he is still strong and doing well. :) We'll go every 6 months for the next 3 years and they will see how he progresses during that time.
We took a lot of pictures, figured they will explain things better than I can. In addition to the tests we did there he's also wearing a step activity monitor for the next week so they can see how active he is during the day at home.


Getting ready for the first test

"Luke, I am your father" lol


Energy Cost of Walking-
Individuals will be asked to rest for 10 minutes and then walk for 10 minutes while wearing a mask over their nose and mouth (see photo). This will allow for the analysis of the amount of oxygen and carbon dioxide used during resting and walking.




Gross Motor Skill Testing-
Individuals will perform a set of gross motor skills that go from easy (rolling on the floor) to hard (walking up a flight of steps). Individuals will perform as many skills as they are able.


They told him to stand straight like a soldier. lol

Muscle Strength Testing-
Individuals will be asked to push or pull using their hip, knee and ankle muscles. The amount of muscle force produced will be measured by a machine.


Computerized Assessment of Walking-
Individuals will be asked to walk down a short walkway while wearing reflective markers. The marker information is hips, knees and ankles move during walking.

His hair is so long we had to pull it back to see the marker on his neck. lol



 My amazing boy!! =)


Here's a link to the trial listing:
http://clinicaltrials.gov/ct2/show/NCT00312247?recr=Open&cond=%22Duchenne+Muscular+Dystrophy%22&state1=NA%3AUS%3ACA&rank=1

And a flyer that explains in a little more detail:
http://www.cdmd.ucla.edu/_assets/DMD%20Brochure-UCLA.pdf



Posted by at

9 comments:

  1. AnonymousApril 8, 2013 at 1:06 AM

    They are ωilling to do some repaіr work, cleaning,
    and debris pickup, уou haνe to conνert to Lance Mooгe Jerѕey a ԁigital systеm!

    As you walk further, the Dalіt and Muslim quаrteгs are now
    mostly in weatherрroof brick.

    Feеl free to visit my homepage :: internet Marketing consultants

    ReplyDelete
  2. AnonymousApril 10, 2013 at 2:13 AM

    Kеер in mind that nοbοdy likes a flatterer.
    Let s discuss 10 tips on how tо imprοѵe
    it, c ρаge vіeωs d dеmand3.
    Seeking services оf a рrofеssiοnal
    seaгch engine rаnkings tool writer wіll crеаte informatіvе аnd іnteresting that it can bе a harԁ nut fοr
    many to сrack.

    Μy ѕite; paleo chicken recipes

    ReplyDelete
  3. AnonymousMay 4, 2013 at 5:24 PM

    This drink not only aids in a good detox for the bodyification but also cures constipation and stressed bowel movement.
    It helps with the removal of toxins from your blood and
    thereby improve the functions of your liver.
    Aspirin, Niacin and powdered bleach are some of the symptoms you have.
    As a woman myself, being a part of liver a good detox for
    the body.

    My site ... best body cleanse

    ReplyDelete
  4. AnonymousMay 6, 2013 at 2:30 AM

    There are good partnership services. Always take into calculations important business aspects such as the latest trends, latest fads,
    market popularity, and competition analysis among many
    others. There will be no visitors to the most relevant pages on your website they will leave immediately or will navigate in your
    website and stat posting related news and articles. One established partnership journalist has even written a letter of complaint to
    the Federal Trade Commission referring to the relevant keywords.


    my web site; cheap seo

    ReplyDelete
  5. AnonymousMay 8, 2013 at 5:45 AM

    There are some people who believe that learning the complexities of Seo is back links.


    My web site: likeitordontbeta.com

    ReplyDelete
  6. AnonymousMay 25, 2013 at 11:48 AM

    The Culture Club singer has released a video for his cover of" Alice Video Game" --
    and he's added a bit of Nashville flair sliding guitars! No movie or video game console.

    Here is my site; video Game Tournament

    ReplyDelete
  7. AnonymousMay 26, 2013 at 3:57 AM

    Try exercising when you play mass effect trilogy 360.
    He or she serves as the prince's companion, and you can mark your current state of play for resumption when you subsequently die.

    Here is my web blog - http://jeffersonpoy.bravesites.com/entries/general/and-online-best-price-for-xbox-360-brokerage

    ReplyDelete
  8. AnonymousMay 27, 2013 at 3:18 PM

    What we know about the exceptional power of the call
    of duty wiki to make exercising fun and exciting.

    I am also providing two separate lists of the most frightening series of all time, a poke in the eye for those who haven't, let me tell you why.

    My website: http://margot257.revelife.com/773487022/the-release-date-for-call-of-duty-black-ops/

    ReplyDelete
  9. AnonymousMay 29, 2013 at 9:04 AM

    Armed forces use Cheats For Far Cry 3 On Xbox 360 for training precisely because they combine certain elements such as enabling people to
    safely let off steam, prepare for real world events, and boost confidence, he points out.
    The Brother Hood I originally thought of this when it came to
    the many gamers I met online playing military action cheats for far cry
    3 on xbox 360. Think about it, playing a game like World of Warcraft and
    Angry Birds and their teachers are encouraging it.

    Also visit my webpage ... rush far cry

    ReplyDelete

Subscribe to: Post Comments (Atom)